Transition of Care. Группа авторов

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СКАЧАТЬ between the pediatrician and the physician for adults, in order for that relationship, based on trust, to be the basis for the transfer of the adolescent from the pediatric system of care to the adult one. A recent report by an expert group of health care professionals concluded that there remains much to be done to ensure that the needs of adolescent patients with chronic endocrine conditions continue to be met during transition [23].

      References

1Busse FP, Hiermann P, Galler A, Stumvoll M, Wiessner T, Kiess W, et al: Evaluation of patients’ opinion and metabolic control after transfer of young adults with type 1 diabetes from a paediatric diabetes clinic to adult care. Horm Res Paediatr 2007;67:132–138.

      2Kipps S, Bahu T, Ong K, Ackland FM, Brown RS, Fox CT, et al: Current methods of transfer of young people with type 1 diabetes to adult services. Diabet Med 2002;19:649–654.

      3Lotstein DS, McPherson M, Strickland B, Newacheck PW: Transition planning for youth with special health care needs: results from the National Survey of Children with Special Health Care Needs. Pediatrics 2005;115:1562–1568.

      4Moons P, Hilderson D, Van Deyk K: Congenital cardiovascular nursing: preparing for the next decade. Cardiol Young 2009;19(suppl 2):106–111.

      5Nakhla M, Daneman D, To T, Paradis G, Guttmann A: Transition to adult care for youths with diabetes mellitus: findings from a universal health care system. Pediatrics 2009;124:e1134–1141.

      6Reid GJ, Irvine MJ, McCrindle BW, Sananes R, Ritvo PG, Siu SC, et al: Prevalence and correlates of successful transfer from pediatric to adult health care among a cohort of young adults with complex congenital heart defects. Pediatrics 2004;113:197–205.

      7Watson AR: Problems and pitfalls of transition from paediatric to adult renal care. Pediatr Nephrol 2005;20:113–117.

8Yeung E, Kay J, Roosevelt GE, Brandon M, Yetman AT: Lapse of care as a predictor for morbidity in adults with congenital heart disease. Int J Cardiol 2008;125:62–65.

9Feudtner C, Christakis DA, Connell FA: Pediatric deaths attributable to complex chronic conditions: a population-based study of Washington State, 1980–1997. Pediatrics 2000;106:205–209.

10Meadows AK, Bosco V, Tong E, Fernandes S, Saidi A: Transition and transfer from pediatric to adult care of young adults with complex congenital heart disease. Curr Cardiol Rep 2009;11:291–297.

      11Blum RW: Transition to adult health care: setting the stage. J Adolesc Health 1995;17:3–5.

      12Kennedy A, Sloman F, Douglass JA, Sawyer SM: Young people with chronic illness: the approach to transition. Intern Med J 2007;37:555–560.

13American Academy of Pediatrics; American Academy of Family Physicians; American College of Physicians-American Society of Internal Medicine: A consensus statement on health care transitions for young adults with special health care needs. Pediatrics 2002;110:1304–1306.

14Cystic Fibrosis Foundation: Patient Registry Annual Data Report. Bethesda, Cystic Fibrosis Foundation, 2008.

15Dodge JA, Lewis PA, Stanton M, Wilsher J: Cystic fibrosis mortality and survival in the UK: 1947–2003. Eur Respir J 2007;29:522–526.

16Moons P, Meijboom FJ: Healthcare provision for adults with congenital heart disease in Europe: a review. Curr Opin Pediatr 2010;22:573–578.

17Hagell A: Building a picture of health from data. J Fam Health 2015;25:32–33.

18Prader A, Largo RH, Molinari L, Issler C: Physical growth of Swiss children from birth to 20 years of age. First Zurich longitudinal study of growth and development. Helv Paediatr Acta 1989;52(suppl): 1–125.

19Godbout A, Tejedor I, Malivoir S, Polak M, Touraine P: Transition from pediatric to adult healthcare: assessment of specific needs of patients with chronic endocrine conditions. Horm Res Paediatr 2012;78:247–255.

20Courtillot C, Baudoin R, Du Souich T, Saatdjian L, Tejedor I, Pinto G, Léger J, Polak M, Golmard JL, Touraine P; Transition GHD Group: Monocentric study of 112 consecutive patients with childhood onset GH deficiency around and after transition. Eur J Endocrinol 2013;169:587–596.

21Malivoir S, Courtillot C, Bachelot A, Chakhtoura Z, Téjédor I, Touraine P: Therapeutic education programme for patients with chronic endocrine conditions: transition from paediatric to adult services (in French). Presse Méd 2016;45:e119–e129.

22Bachelot A, et al: Impact of pediatric to adult care transition on quality of life in patients with congenital adrenal hyperplasia diagnosed during childhood. Endocr Connect 2017;pii: EC-17-0094.

23Hokken-Koelega A, van der Lely AJ, Hauffa B, Häusler G, Johannsson G, Maghnie M, Argente J, DeSchepper J, Gleeson H, Gregory JW, Höybye C, Keleştimur F, Luger A, Müller HL, Neggers S, Popovic-Brkic V, Porcu E, Sävendahl L, Shalet S, Spiliotis B, Tauber M: Bridging the gap: metabolic and endocrine care of patients during transition. Endocr Connect 2016;5:R44–R54.

      24Garvey KC, Markowitz JT, Laffel LMB: Transition to adult care for youth with type 1 diabetes. Curr Diab Rep 2012;12:533–541.

      Philippe Touraine, MD, PhD

      Centre de Référence des Maladies Endocriniennes Rares de la Croissance et du

      Développement des Pathologies Gynécologiques Rares, Institut E3M-ICAN, Hôpitaux

      Universitaires Pitié-Salpêtrière Charles-Foix, Médecine Sorbonne Université

      47–83, boulevard de l’Hôpital, FR–75651 Paris Cedex 13 (France)

      E-Mail [email protected]

      Michel Polak, MD, PhD

      Pediatric Endocrinology, Gynecology and Diabetology, Centre de Référence des Pathologies

      Gynécologiques Rares et des Maladies Endocriniennes Rares de la Croissance et du

      Développement, Hôpital Universitaire Necker Enfants Malades, Université Paris Descartes

      149, rue de Sèvres, FR–75015 Paris (France)

      E-Mail [email protected]

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