Transition of Care. Группа авторов

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СКАЧАТЬ target="_blank" rel="nofollow" href="#ulink_6372be49-c151-51ef-b747-64e86ce762fe">54Reisch N, Hahner S, Bleicken B, Flade L, Pedrosa Gil F, Loeffler M, Ventz M, Hinz A, Beuschlein F, Allolio B, Reincke M, Quinkler M: Quality of life is less impaired in adults with congenital adrenal hyperplasia because of 21-hydroxylase deficiency than in patients with primary adrenal insufficiency. Clin Endocrinol (Oxf) 2011;74:166–173.

55Bachelot A, Vialon M, Baptiste A, Tejedor I, Elie C, Polak M, Touraine P: Impact of transition on quality of life in patients with congenital adrenal hyperplasia diagnosed during childhood. Endocr Connect 2017; 6:422–429.

56Blum RW, Garell D, Hodgman CH, Jorissen TW, Okinow NA, Orr DP, Slap GB: Transition from child-centered to adult health-care systems for adolescents with chronic conditions. A position paper of the Society for Adolescent Medicine. J Adolesc Health 1993;14:570–576.

57Kruse B, Riepe FG, Krone N, Bosinski HA, Kloehn S, Partsch CJ, Sippell WG, Mönig H: Congenital adrenal hyperplasia – how to improve the transition from adolescence to adult life. Exp Clin Endocrinol Diabetes 2004;112:343–355.

58Speiser PW, Azziz R, Baskin LS, Ghizzoni L, Hensle TW, Merke DP, Meyer-Bahlburg HF, Miller WL, Montori VM, Oberfield SE, Ritzen M, White PC; Endocrine Society: Congenital adrenal hyperplasia due to steroid 21-hydroxylase deficiency: an Endocrine Society clinical practice guideline. J Clin Endocrinol Metab 2010;95:4133–4160.

59Malivoir S, Courtillot C, Bachelot A, Chakhtoura Z, Téjédor I, Touraine P: Therapeutic education programme for patients with chronic endocrine conditions: Transition from paediatric to adult services. Presse Méd 2016;45:e119–e129.

60Godbout A, Tejedor I, Malivoir S, Polak M, Touraine P: Transition from pediatric to adult healthcare: assessment of specific needs of patients with chronic endocrine conditions. Horm Res Paediatr 2012;78:247–255.

61Bidet M, Bellanné-Chantelot C, Galand-Portier MB, Golmard JL, Tardy V, Morel Y, Clauin S, Coussieu C, Boudou P, Mowzowicz I, Bachelot A, Touraine P, Kuttenn F: Fertility in women with nonclassical congenital adrenal hyperplasia due to 21-hydroxylase deficiency. J Clin Endocrinol Metab 2010;95:1182–1190.

62Bidet M, Bellanné-Chantelot C, Galand-Portier MB, Tardy V, Billaud L, Laborde K, Coussieu C, Morel Y, Vaury C, Golmard JL, Claustre A, Mornet E, Chakhtoura Z, Mowszowicz I, Bachelot A, Touraine P, Kuttenn F: Clinical and molecular characterization of a cohort of 161 unrelated women with nonclassical congenital adrenal hyperplasia due to 21-hydroxylase deficiency and 330 family members. J Clin Endocrinol Metab 2009;94:1570–1578.

      Anne Bachelot

      Centre de Référence des Pathologies Gynécologiques Rares, ICAN

      Centre de Référence des Maladies Endocriniennes Rares de la Croissance

      Department of Endocrinology and Reproductive Medicine, AP-HP, IE3M

      Hôpital Pitié-Salpêtrière

      47–83, boulevard de l’Hôpital, FR–75013 Paris (France)

      E-Mail [email protected]

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