A Forever Family: Their Miracle Child. Susan Carlisle

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СКАЧАТЬ on, head outside and stretch your legs,’ he told Jade.

      ‘Amber’s case is bright pink with yellow polka dots,’ Jade replied as she scooped up the rag doll, now a little grubby from being dragged through the airport, and put it in her oversized handbag. ‘Mine’s a little less embarrassing for you. It’s a silver hard-shell suitcase with a red luggage tag.’

      Arthur smiled, handed Maureen Jade’s carry-on and headed over to wait with the other passengers and families for the luggage to arrive.

      Slipping on her sunglasses, Jade stepped out under the brilliant blue sky with Amber stuck by her side like a magnet. The sun felt good on her face. Perhaps a break like this was just what they both needed.

      ‘We can’t tell you how excited we both are to have you and Amber here, Jade.’

      Jade turned and smiled at Amber’s grandmother. The joy in Maureen’s face made the long flight worthwhile to Jade. ‘We’re very happy to be here.’

      It wasn’t long before Arthur reappeared with the two large suitcases and they were on their way to the high-rise airport car park.

      ‘Uncle Mitchell might be there when we get home,’ Maureen said to Amber, who in turn showed little reaction to the words of the nice older lady she didn’t know.

      Jade was momentarily confused. Uncle Mitchell? Then quickly the fog of the long flight lifted and she remembered David’s brother. Although last she’d heard he was still living in some remote part of the world. He was the older but immature brother who never settled down but instead travelled widely and lived his life as one great big adventure. Like a nomad who pitched a tent wherever the mood took him.

      ‘Isn’t Mitchell living overseas?’

      Maureen ran her fingers gently through Amber’s mess of curls that Jade realised badly needed a brush. This time Amber didn’t flinch, and Jade surmised that her niece had worked out that Maureen posed no threat. Jade hoped the two would grow close quite quickly, as their time together would be limited and precious.

      ‘No, Mitchell’s here in Adelaide at the moment. He’s been in Africa for over four years but he came home a few months ago. Not long after he heard you were planning on visiting. Quite a coincidence really.’ She raised her gaze to meet Jade’s and with a knowing look added, ‘I think he knew we needed him. Although he’ll never admit it. He’s quite the independent type but I think he was worried about all of us. Not sure how long he’ll stay, though, as he’s not one to lay down any roots. But still, he’s here and he has the opportunity to meet you and celebrate his niece’s birthday and that is all that matters.’

      Jade didn’t give it much thought. Her focus was to repay Arthur and Maureen for their kindness in the only way she could—by allowing them to spend time with Amber. Uncle Mitchell could waltz in and out as he pleased, which, from everything she had heard, was his style. No fixed address for any extended period appeared to be his way of life and it didn’t look as if it had changed.

      Mitchell’s devil-may-care way of life was not her concern. She had met men like him before and had dated a few of them but that was in her past. And she had no intention of treading in that territory again. When it came to men Jade was numb. She didn’t hate men, but she certainly didn’t need a man in her life any more. Her priorities had changed the night of the accident. She didn’t have time to think about men or relationships. They no longer factored into her life.

      Now her focus was Amber, her work at the hospital and building a happy, secure life for the two of them. Men were a distraction and she didn’t have room in her life for any distractions. She owed her sister and David her undivided attention to their daughter. She had promised them both that in her prayers the night Amber had been born.

      ‘So how is little Amber doing?’ Arthur asked matter-of-factly, as he inserted his validated parking ticket into the machine and waited for the arm to rise and release them. ‘I know she’s had a number of medical issues but she’s a far cry from the infant we saw in ICU. She looks the picture of health now.’ As he spoke, the automated arm lifted, and they left the car park and headed in the direction of the main road that would lead to their beachside residence.

      Jade looked down at Amber, who was still drowsy and now sucking her thumb. The last time she’d seen Maureen and David had been at the funeral and when they’d visited Amber in hospital. She had been less than a week old and a little over two pounds by then. The little girl had been through so much over the years and there were still potential medical hurdles ahead, but Jade tried not to dwell on them. She was also aware that Arthur was a retired orthopaedic surgeon so he had the understanding and ability to process the medical details.

      ‘As I said in my emails, Amber was diagnosed with dysplasia in her right kidney.’

      ‘What’s kidney dysplasia and is it serious?’ Maureen interrupted.

      ‘It means, darling,’ Arthur began to explain as he watched the lights change at the intersection, ‘that one of little Amber’s kidneys didn’t develop properly before she was born and she has fluid-filled sacs instead of healthy tissue in one kidney, but the other one is perfectly fine and doing the work of both.’

      ‘Can that go on indefinitely or will the good kidney be overworked?’ Maureen’s question was directed at both Jade and Arthur.

      Arthur looked over at his wife with a knowing expression. She had no medical knowledge but she was an intelligent and inquisitive woman and they were two of the many reasons he had married her. He knew she would have excelled in any field she had chosen so he did not need to over-simplify his medical terminology around her.

      ‘A baby or, in Amber’s case, a young child with one working kidney can grow normally without too many health problems. Babies with kidney dysplasia affecting both kidneys generally do not survive pregnancy, and those who do survive need dialysis and a kidney transplant very early in life.’

      ‘How dreadful for the child and the parents.’

      Jade stroked Amber’s forehead gently and watched her precious niece holding on tightly to the favourite rag doll she had pulled from Jade’s bag.

      ‘We are fortunate, but Amber is still being closely monitored back in LA,’ Jade added.

      ‘How did it happen?’ Maureen asked as they left the highway.

      ‘Kidney dysplasia can have genetic causes,’ Jade replied, imparting the information as if she were back at the hospital, rather than talking about the little girl dozing by her side. It was easier that way. ‘It appears to be a dominant trait, which means one parent may pass the trait to a child. Normally, when this is discovered, the child’s parents undergo an ultrasound to confirm if either have the condition but this wasn’t possible for Amber so we will never know if it was Ruby or David. And really it’s a moot point,’ she said as the car headed over a small bridge. Jade could see the shimmering ocean ahead and she looked forward to spending a few weeks by the beach, not overthinking what might lie ahead. She knew what she might face in the future with Amber’s condition and, as always, it was upsetting just to think about it.

      ‘But the important thing is our granddaughter is healthy and that makes me happy.’

      ‘Amber is healthy now,’ Jade confirmed, then paused for a moment to gather her thoughts and not become emotional. She was tired from the flight and she tried not the think about the potentially life-threatening condition that Amber could face if her functioning kidney were to СКАЧАТЬ