Медицинские вопросы и проблемы подростков, больных муковисцидозом. Коллектив авторов
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СКАЧАТЬ with a chronic condition: challenges living, challenges treating. Lancet 2007;369:1481-9

      27

      Sawyer SM, Drew S, Yeo M, Britto M. Adolescents with a chronic condition: challenges living, challenges treating. Lancet 2007;369:1481-9

      28

      Sawyer SM, Drew S, Yeo M, Britto M. Adolescents with a chronic condition: challenges living, challenges treating. Lancet 2007;369:1481-9

      29

      McPherson M, Arango P Fox H. A new definition of children with special health care needs. Pediatrics 1998;102:137-10

      30

      Bethell CD, Read D, Stein RE, Blumberg SJ, Wells N, Newacheck PW. Identifying children with special health care needs: development and evaluation of a short screening tool. Ambul Pediatr 2002;2:38-48

      31

      Olsson CA, Boyce M, Toumbourou JW, Sawyer SM. The role of peer support in facilitating psychosocial adjustment to chronic illness in adolescence. Clin Child Psychol Psychiatry 2005;10:78-87

      32

      Suris J-C, Michaud P-A, Akre C, Sawyer SM. Health risk behaviours in adolescents with chronic conditions. Pediatrics 2008;122: e1113-18

      33

      Sawyer SM, Drew S, Duncan R. Adolescents with chronic disease: the double whammy. Aust Fam Physician 2007;36:2-6

      34

      Sanci LA, Sawyer SM, Kang M, Haller-Hester D, Patton GC. Confidential health care for adolescents: reconciling clinical evidence with family values. Med J Aust 2005;183:410-14

      35

      Duncan RE, Vandeleur M, Derks A, Sawyer S. Confidentiality with adolescents: what do parents think? J Adolesc Health 2011 ;49:428-30

      36

      World Health Organization. Adolescent friendly health services an agenda for change. Geneva: World Health Organization, 2002

      37

      Cystic Fibrosis Foundation Patient Registry: 2010 Annual Data Report. Bethesda, MD: Cystic Fibrosis Foundation, 2011

      38

      Morgan WJ, Butler SM, Johnson CA et al. Epidemiologic Study of Cystic Fibrosis: design and implementation of a prospective, multicenter, observational study of patients with cystic fibrosis in the U.S. and Canada. Pediatr Pulmonol 1999; 28:231-41

      39

      Cystic Fibrosis Foundation Patient Registry: 2010 Annual Data Report. Bethesda, MD: Cystic Fibrosis Foundation, 2011

      40

      Cystic Fibrosis Foundation Patient Registry: 2010 Annual Data Report. Bethesda, MD: Cystic Fibrosis Foundation, 2011

      41

      Konstan MW, Morgan WJ, Butler SM et al. Risk factors for rate of decline in forced expiratory volume in one second in children and adolescents with cystic fibrosis. J Pediatr 2007; 151:134-9

      42

      Kerem E, Reisman J, Corey M, Canny GJ, Levison H. Prediction of mortality in patients with cystic fibrosis. N Engl J Med 1992;326:1187-91

      43

      Konstan MW, Wagener JS, VanDevanter DR. Characterizing aggressiveness and predicting future progression of CF lung disease. J Cyst Fibros 2009;8S:S15-S19

      44

      Kerem E, Reisman J, Corey M, Canny GJ, Levison H. Prediction of mortality in patients with cystic fibrosis. N Engl J Med 1992;326:1187-91

      45

      Bonnel AS, Song SM, Kesavarju К et al. Quantitative air-trapping analysis in children with mild cystic fibrosis lung disease. Pediatr Pulmonol 2004; 38:396-105

      46

      Sly PD, Brennan S, Gangell С et al. Lung disease at diagnosis in infants with cystic fibrosis detected by newborn screening. Am J Respir Crit Care Med 2009; 180:146-52

      47

      Stick SM, Brennan S, Murray С et al. Bronchiectasis in infants and preschool children diagnosed with cystic fibrosis after newborn screening. J Pediatr 2009; 155:623-8

      48

      Pillarisetti N, Linnane B, Ranganathan S; AREST CF. Early bronchiectasis in cystic fibrosis detected by surveillance CT. Respirology 2010; 15:1009-11

      49

      Farrell PM, Li Z, Kosorok MR et al. Longitudinal evaluation of bronchopulmonary disease in children with cystic fibrosis. Pediatr Pulmonol 2003; 36:230-40

      50

      Gustafsson PM, Aurora P Lindblad A. Evaluation of ventilation maldistribution as an early indicator of lung disease in children with cystic fibrosis. Eur Respir J 2003; 22:972-9

      51

      Kraemer R, Blum A, Schibler A, Ammann RA, Gallati S. Ventilation inhomogeneities in relation to standard lung function in patients with cystic fibrosis. Am J Respir Crit Care Med 2005; 171:371-8

      52

      Kieninger E, Singer F, Fuchs О et al. Long-term course of lung clearance index between infancy and school-age in cystic fibrosis subjects. J Cyst Fibros 2011; 10:487-90

      53

      Rosenthal M. How good are pulmonary function tests as an indicator of short and long term health status? Pediatr Pulmonol 2009; S32:171-2

      54

      Konstan MW, Wagener JS, VanDevanter DR. Characterizing aggressiveness and predicting future progression of CF lung disease. J Cyst Fibros 2009;8S:S15-S19

      55

      Schluchter MD, Konstan MW, Drumm ML, Yankaskas JR, Knowles MR. Classifying severity of cystic fibrosis lung disease using longitudinal pulmonary function data. Am J Respir Crit Care Med 2006; 174:7 80-6

      56

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