The Experiment Must Continue. Melissa Graboyes

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СКАЧАТЬ for Medical Research, Amani Research Centre). The two-week course gave me newfound appreciation for the work of entomologists, and firsthand experience doing the research that I often read about in historical documents. Our entomological research work involved the physical labor of trekking through thick mud to find mosquito breeding sites and stomping around cesspits, the challenges of convincing homeowners to allow mosquito traps in their homes at night, and the tedious laboratory work of mosquito identification and dissection to establish whether the mosquitoes were malarial. Perhaps just as important, the course introduced me to a set of well-educated East Africans who worked in science and alerted me to the existence of valuable historical materials not in the national archives. They also provided invaluable introductions to colleagues throughout the region.

      My time living and researching in East Africa made me much more aware of all the ways doing “good” (or at least accurate) history could be threatened. While in the port city of Mwanza, in the western part of Tanzania, I began reading about the work of the Filariasis Research Unit and its attempt to eliminate filariasis from Ukara Island in Lake Victoria. The documents were plentiful, and detailed a very obvious break in 1959. From 1956 until 1959, residents on the island had willingly participated in drug trials and other research activities. After that date, participation rates dropped off staggeringly. In a matter of a few years, Ukara went from being an ideal testing place to one where researchers loathed working. Through careful reading of the documents, I had figured out the main reason why: the Wakara had been accepting experimental drugs that the researchers had been advertising as “medicine” for over four years, but very few people had been cured. People were tired of receiving ineffective drugs and being lied to, and refused to participate. Since Ukara Island was only about forty miles north of Mwanza, and was reachable by boat, I decided to take a trip to flesh out my understanding.

      A few weeks later I was on Ukara Island, speaking with two older men who remembered the filariasis project. When I asked about 1959, and why people suddenly stopped participating, they gave a simple answer: there was a new mtemi (local leader) who was not as excited about the research project as the old leader, and he had not instructed residents to cooperate. Although I asked the two men directly about whether the “medicines” given out by the researchers were effective, or whether the Wakara people were angry about being lied to, they looked at me quizzically.

      The experience on Ukara Island reemphasized the importance of actually visiting a place and talking with the people who had lived through these events, and of searching out materials in more unusual places. I didn’t entirely ignore traditional archives. I spent weeks and months in the Kenyan National Archives, the Zanzibar National Archives, the Public Records Office in London, and the Wellcome Library in London, in addition to accessing digital materials of the World Health Organization. But I quickly realized that materials in these places were unlikely to answer the questions about human experimentation I was most interested in. I didn’t want to rely on official reports housed in the national archives, and be left “listening for the silences” of African voices. In this spirit, I prioritized visiting places where research stations were located, or where large-scale projects had taken place. After fourteen months of research in East Africa, I had gathered archival and oral data in a dozen different locations, ranging from mission hospitals to remote islands in Lake Victoria.

      Two of the colonial-era research stations were in the northern Tanzanian town of Amani and in western Tanzania in Mwanza. (Amani has a fascinating, long history, having originally been built by the Germans as an agricultural and forestry research station.⁸) These two places ended up providing thousands of pages of uncatalogued documents that few—if any—other scholars have used and written about. The materials included the private papers of medical researchers who worked for the Pare-Taveta Malaria Scheme, the East African Medical Survey and the Filariasis Research Unit. There were confidential research reports, letters written by frustrated field workers to their bosses in the cities, notes in Swahili from angry residents who objected to research being done in their villages, and newspaper clippings reporting both the organizations’ press releases and residents’ reactions.⁹ Very few of these documents exist in duplicate in other archives; many documents only reside in Mwanza and Amani.

      I stayed for weeks in each location, and it was invigorating work, since each day led to new discoveries. But, for all the excitement of historical discovery, working in Mwanza and Amani was not without challenges. The documents were entirely disorganized, and after receiving approval to work with materials in Mwanza, I was furious when a mid-level bureaucrat denied me entry. When I found a sympathetic co-worker to unlock the room where the documents were, I spent another day working through the materials. I did, however, wonder if I had actually become a “thief”—which was what the angry bureaucrat yelled at me when he returned the next day to find me inside the office.

      I wasn’t so blind as to be ignorant of the irony, or the myriad ways my own challenges mimicked those of earlier medical researchers. There I was, accused of being a “thief” and “stealing” documents, writing about the challenges of medical researchers who were also called thieves and accused of stealing blood. The challenges of field research in East Africa often created morally ambiguous situations: situations where I had to figure out how to translate formal ethics into field ethics. Should I bribe someone to get access to materials? (No, but a heavy dose of persuasion and pestering was acceptable.) Was I a “thief” for figuring out a way to use documents one man had prohibited me from seeing? (No, because he had no formal authority to make that decision, and I had been granted access by those in charge.) Did people actually understand and value my project, or were they just letting me do what I wanted because I was a white foreigner handing out gifts? (Hard to say.) There were no easy answers, but this discomfort and self-questioning bred a deeper appreciation of the challenging situations any type of researcher encounters.

      FIGURE 1.1. Uncataloged archival materials at Amani Medical Research Station, Amani, Tanzania, 2008. Photo by author.

      In addition to the archival materials, oral sources derived through semistructured interviews were my other source of information. I conducted a total of forty-three formal interviews with people who participated in medical research (as subjects or members of the community who assisted in the research), professional medical researchers during the colonial or postcolonial eras, missionaries who helped researchers gather participants, and with East Africans who lived in communities where medical research had been conducted. Interviews typically lasted about an hour, although a few of the livelier ones went on for two to three hours. I asked questions about what “research” was; past experiences with medical researchers, or working as medical researchers; and opinions about difficult medical scenarios I described. Asking about research was complicated since the topic was not well understood by people. That usually led me to ask if the person had ever given blood, taken pills or received shots outside of the hospital, or met a roving “doctor” or “expert” who was doing “research” or an “investigation.” Although I spent a lot of time conducting formal interviews, many of my best insights came from conversations with a mix of health professionals, young people, amateur historians, and the best chicken fryer in Zanzibar. These informal exchanges gave me a chance to talk about my research and have lively discussions without falling into the rigidity of a formal interview.

      I analyzed the oral and written sources in dialogue with each other and paid close attention to places of discord—when the oral and archival sources were in clear conflict. In some cases, I was able to “right” these disagreements; in other cases, a level of ambiguity remains. I did not begin by assuming that my oral sources were any less accurate or “factual” than the written sources, nor that the value of my interviews was only in preserving people’s opinions, impressions, or understandings of past encounters. In this way, I depart from the approach taken by Luise White in her groundbreaking and creative work on blood rumors in East Africa—a topic I discuss more fully in the conclusion of chapter 2.

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