There are two important features I observe in the many long-term survivors I have worked with and come to know well. First, they really applied themselves—they did many things. Second, the main things that they did they had in common, while many varied some of the minor details.
Let me explain. Some years back, I surveyed thirty-five long-term survivors. These were all people who had been given short-term prognoses by good medical people. But they went on to turn their difficulties around and were alive many years later. In the survey, they were asked to consider all the things that may have helped them to recover and to rank their importance on a sliding scale. They were asked to reflect on the importance any medical treatment had played, any natural therapies, overcoming fear of dying, forgiveness, nutrition, meditation—all the options you could think of.
The first thing that stood out in this survey was that most people valued most things highly. What this indicated was they did do a lot. Turning around a major illness is not a casual affair. It does take work. These people were committed. They did a lot, and they rated highly the value of many things that they did do.
These people were then asked to think back over their recovery and to identify what they considered to be the three most helpful things they did. Interestingly, quite a number took the trouble to write on the survey that they did not like the question! They had done so much, and found so many things to be helpful, that choosing just three was quite challenging.
Anyway, they did choose three, and the results were fascinating and important. Three things stood out way and above the others. They were the diet, the meditation and the development of their spiritual life.
Now, many of these people were alive ten years after they had initially been predicted to die. So next I asked them what they would recommend to people newly diagnosed. Here four things stood out. The diet and meditation again, but then the advice was to attend a well-run, lifestyle-based self-help group (presumably to learn these techniques and be supported in applying them) and to aim to find meaning and purpose in life.
So what is it with the spiritual life and the meaning and purpose? What our survivors are pointing out is the importance of the mind and its key role in all we do. What inspires you? What motivates you? Why do you want to get well? How important is getting well to you? How much are you prepared to do? How much effort do you want to make? What can you learn through this illness? What meaning and purpose does it clarify for your life? What will you do with your good health? What will you do with your life once you are well again?
These are all questions for our mind. They come under the heading of spirituality, meaning and purpose. It is well said that if you have a “reason” to do something, you will find a “how.” If the desire to live is strong and you follow a logical approach, there is every reason to expect a good outcome.
Have enough courage to believe in the possibilities. Then take the next step.
The First Big Question • Do I Really Want to Get Well Again?
You may say I am crazy to ask a question like this. However, the fact is some people diagnosed with cancer do accept their condition as terminal and cannot imagine themselves getting well again. For many of these people, this reflects their lack of any real hope. In some cultures there is still a pervading belief that you get cancer and you die. Some families, some individuals still hold this view, either as a result of some morbid fear or maybe as the product of experiences they have had with people they knew who did not do so well.
The antidote? Hope. People in this situation need inspiration—they need to realize the possibilities. This is where groups can be helpful, especially if they contain long-term survivors who can be met, seen, and touched! Even hearing stories of recovery or reading of them in Inspiring People or Surviving Cancer can help reawaken lost hope and help people to move forward.
However, there is a deeper issue. Some of the people whom I have known had given up on life itself. Some of these people had enough clarity to tell me that life was just too hard. We will examine this possibility in more detail in the chapter on the causes of cancer, but some people, when you come to know them really well, confide that they have lost their zest for life. Perhaps through past trauma, maybe through a variety of accumulated reasons, the future just seems too difficult. It is almost as if they have had enough of life and if cancer is the way to go, then they are not going to fight it.
The antidote? Like our survivors said, find the meaning and purpose in life. What ignites your passion? What inspires you? What have you got to live for? Is there something from years gone by that you put aside that now can be rekindled? Could you change your circumstances to make life seem worth living again? It is so extraordinary to be a living human being. Even the tough times are extraordinary. When we reflect on it, there really is so much to live for.
But what to do right now? If you are clear you want to recover, then no problem, go for it. Move on to the next step, the next question. If you have doubt, if you are unsure about survival, first examine the question of hope and seek inspiration. If there are deeper doubts or fears, or a lack of motivation, look into your heart, seek inspiration, and seek solutions. This may well be the time to talk to a trusted friend or an experienced counselor who can assist you to reach a point of clarity.
So while there is nobility in a good death and while the prospect of a good death is important for all of us as certainly we will all face it one day, the majority of You Can Conquer Cancer focuses on the process of getting well and being well.
The Second Big Question • Who Is Responsible for My Decisions?
This question is best characterized by imagining a visit to your doctor. Do you go to them and say, “Here is my diseased body. You fix it. You tell me what is wrong. You decide what treatment I will have. I will accept whatever you say. The responsibility is yours.”
Or, do you go to them and say, “Here is my diseased body. What can we do to get it better again?” With this latter approach, the relationship becomes a more equal one. Instead of handing responsibility for your well-being—and your life—to someone else, you are embarking upon a shared quest for health, a collaborative venture.
Now, in all probability, as time goes on, you are likely to work with a range of health professionals. Their technical skills and their communication skills are bound to vary. Some will be excellent; however, whether through lack of time, lack of aptitude, interest or training, some may well be poor communicators. For the same reasons, some may have a narrow range of expertise. Being practical, it may well serve you best to use some doctors and other health professionals almost mechanically. You take advantage of their technical skills, you take their treatment while accepting that to attempt a deep and meaningful discussion may be rather futile.
What is paramount is to identify the key person in your healing team. I suggest the ideal person for this could well be a general practitioner (GP) or family physician. This implies the need to find and work with a broadly trained, open-minded doctor you can respect and trust. Someone you can talk with freely. Someone who is interested in and takes account of your own, unique situation. Your hopes and your beliefs. Someone who is prepared to set out your options, explain the possibilities and the risks and then give time for questions. Someone who is not afraid to offer a considered opinion, to tell you what they would recommend if you were their own partner, parent or child. And then encourages you to make your own choices and supports you in them.
Currently, many hospitals are working in a more integrated way. They are setting up teams of doctors and allied health professionals who can come together to discuss individual cases and make specific recommendations. This is all to the good, but the questions still remain, who do you talk to? Who coordinates your management? Who is the focal point?
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